A lot going on in my brain here. Well, maybe not a lot but I will write out my thoughts. It is good to have a record of what I have been doing lyme-wise because sometimes I need to reference back to this blog to find out some things about myself and my treatment.
First off, I have not been taking any vitamins or supplements for the most part since beginning my antibiotic treatments in August this year (2013). At the end of December I will have completed the 5 month antibiotic point! I am not really 'herxing' anymore other than the daily fatigue which seems to be getting a bit better but it may just be that I have been spreading out the Tinidazole out to 500mg per day, every day rather than 500mg 2x a day, 2 weeks on 2 weeks off. I am back to doing the 500mg 2x a day though right now. Anyways. That is what is up with treatment.
And my next doctor appointment is coming up the 2nd week of January. There are some things I want to cover with my doctor. I want to talk about how when I took clindamycin for tooth pain back in June, it made me ache all over and makes me think it may have been the babesia issue reacting. I mean I felt sore all over. This may be the source of the muscle tenderness I have that has NEVER gone away with any one of the treatments. OR how when I took the Artemesinin in high dose for the first time my muscles (especially thigh and buttocks!) were EXTREMELY sore! Now that the layer of Bartonella has been peeled off, and the Lyme symptoms (other than fatigue) have gotten better, I now am focusing on the muscle aches, the fatigue, the blurred vision and my cycle These all seem to point to babesia. Or parasites?? But this next appointment, I am sure will be about Babesia because I will be coming up on 6 months of Bartonella treatment with antibiotics (which I think the Bartonella was long gone with the HH2 treatment, but heck, why not kill the heck out of it for 6 months with antibiotics for good measure).
Life-wise - I am compiling the kids lists for Christmas. Electronics top the lists. UGH! Our weekends are spent on electronics. With my fatigue from the treatment, I don't have the energy and will to push us all out the door into more physical activity. And after all, it is winter so it is not exactly major outdoor activity weather at this time. So it may be another year of buying this type of stuff for the kids. Hopefully, when next year comes around - I will have more stamina and not have to depend so much on electronics to keep the kids minds busy and engaged. I must say, they are not allowed TV or Electronics during the week at all, unless it is schoolwork so I haven't completely given in! We do have some boundaries. But the weekends, I unwind. And so do they... They would love to do other things but for now, it is what it is.
PS - I bought the Z-coils. I am still testing them out... I've been so busy getting ready for Christmas when I have the energy that I haven't tested them out by going for a walk in them. The first few days I had them, my hip was hurting but it could just be a coincidence. I wore them to Target and had no foot pain while walking in them. Then a few days later, I wore a pair of boots (with no kind of orthopedic support) and I was in total pain. I couldn't wait for the shopping trip to be over.
So for my upcoming appointment. I need to remember the following items:
Babesia -
- Clindamycin Reaction
- Artemesinin Reaction
- Muscle tenderness (tender sore points that haven't been worked out)
- Constipation
- Fatigue (collapse in need of a nap when taking Tinidazole)
- Blurred Vision (at night, on and off about 1/2 the days out of the month)
- Dreams (every darn morning! - I never dreamed before treatment!! - crazy!)
- PMS issues (Day 14 Fatigue, Fatigue and Low Feelings Before and After)
- Continue on Tinidazole (and Doxy?) (Add Mepron? And Zith? Add Art?? Add Bab-2?)
- Parasite (can be added??)
Resolving Symptoms (they started with treatment and got really bad and now are gone)
- Vibrations, Tingling, Numbness
- Stabbing Pains
- Lack of motivation (???)
- Stool is no longer /oils in toilet no longer seen(when I added Tinidazole)
Test:
- Adrenal Result
- Test 4 - EBV and other viruses panel, Protomyxzoa, CD-57?
- Neuroscience Neurotransmitter Test
- Hormone, Day 14, Day 10 (month test??)
Teeth:
- Root Canal, Partial, Zirconium Implant (eek! $$$ :-( !!!)
Added Notes - January 1, 2013
- Parasite Treatment for 1 month (test to see if anything happens)
- Alinia, Mebendazole with Doxy for 2 weeks with Humaworm
- Tinidazole, Doxy with Humaworm for 2 weeks.
- Anything to add? Klinghardt protocol? Ivermectin??
Then my idea is to take the following. If no parasite reaction then good! If not - continue parasite???
Doxcycline
Tinidazole (can I take 1 pill a day to minimize fatigue, rather than 2 weeks on 2 weeks off?)
Malarone (easier because it is a pill/heard of success with fibro - or switch to after Mepron)
Zithromax
Clindamycin (reaction to this, muscles sore...think it may help with fibro symptoms???)
Nystatin (no longer react to it!)
