Okay. So I started Biaxin as well as Nystatin 1 week ago.
I feel ALOT better than how I was feeling right after the return of our ski trip. ALOT better.
The whole week after our ski trip (which I didn't ski but the rest of the family did) I spennt laying on the couch sleeping ALL day after I got the kids ready for school. My husband was home that week and he picked them up from school because I was STILL sleeping by the time they were ready to be picked up! I would have woken up and got them, even with the intense fatigue, but it was nice to lean on him and have him home that week. It was REALLY scary to get that tired. I mean I felt like I had regressed to the beginning of treatment and even then I felt BETTER!! So it was really bad. And then I get the thought, what if I am going to be permanently like this?
During that week I also had an intense yeast infection that began after the first few days of fatigue Like out of control So I took fluconozole and nystatin. I also used by probiotic capsules as vaginal suppositories to combat the yeast as well. After the yeast infection died way down, I started the Biaxin.
The first day was HEAVEN. I accomplished a yard project. I had started in the morning around 10 or 11am and usually by 1:30 or so I tucker out. Actually, usually I have NO MOTIVATION to do anything so I just sit around the house. Literally. So come 1:30 I am still going strong with the yard project and don't feel the urge to lay down and rest. The feeling I always get when it gets overwhelming and I just know I am done. I took the biaxin capsule around 12:30 or so.
I then went and did a little research on Biaxin. Why? Because I was curious if it had any affect on keeping one alert during the day because I felt it had done that for me. Guess what? It has been used to treat hypersomnia (excessive daytime sleepiness) so that says something. I'd like to think it is my body that now has it's own energy to be awake longer (maybe from the massive fatigue herx the week before and bugs diying off from that) but I think it is most likely the Biaxin. So that is a wanted side effect for me. I actually felt like me for the first time in a long time using it! I mean, before Lyme, I was constantly doing projects, exercising, volunteering, running around all over the place, socializing, gardening etc. So it felt good to be that person!! SO GOOD!
I would have never taken Biaxin had my LLND not suggested it. I had never really given it much thought and if you know anything from reading my blog, you know that I give everything ALOT of thought!! I research everything and am driven to know the root cause of everything that is happening in my life and body.
Anyways, so what is next on the agenda? Next, is adding in Malarone. I have this yucky cold with headache that everyone in our family has right now and I am just getting over it. I don't really want to start the Malarone while I am feeling that way. I ordered some omega oil to put into protein shakes to take with the Malarone because you have to take 23 grams of fat with it. Yikes! So, I am trying to do it the most healthy and convenient way possible. But that is ALOT of fat. That has to happen twice a day.
After adding in the Malarone, I will add in the Cholestyramine. I will take this around lunch time 1 time a day. I need to take it with fat as well. Well, 1/2 hour after taking the Cholestyramine, I am supposed to have something fatty. So that makes 3 times a day where I need to ingest large amounts of fat. Yay.....
I have this muscles soreness, tenderness in my inner thighs, my outer tricep area that I am hoping goes away either with the Malarone treatment or the Cholestyramine. I think it is a Babesia or a stored toxin issue so those medicine address both of those causes. I am hoping, hoping, hoping!!!
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